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Asthma

The asthma blog is written by people living with asthma and caring for those with asthma. They discuss their symptoms, treatment and life with the condition. To join the blog, email talk@nhschoices.nhs.uk
  • Fed up

    by Lottielou5972 on 01 February 2010

    Sorry guys if I am not my usual chirpy self, having a "Blue Moment,"  been yo-yoing on Prednisolone again.  Haven't had a 7 consecutive nights of sleep in a month, and the cold weather on top is making me feel quite blue.  I am treated for depression relating to having long term health problems, but I suspect that because of the recent increase/ then decrease in Prednisolone is just kicking off another bout.  Thankfully I know the signs well and shall be visiting my poor long suffering GP again (he's a good chap, but often feel sorry for him every time I turn up).  Life with a syringe driver is proving fun or not, the sof sets that deliver the medication under my skin, have decided to be naughty and cause abcesses and one ulcer that after 3 months is now beginning to heal.  The trouble with being brittle asthmatic and using a syringe driver I am some what of an oddity to my respiratory nurse and whilst she is a great support often has to look else where for answers because she has little experience when I incur little issues like sof set problems.

    Lottie Dog continues to be ever faithful sidekick (or pain in the bum when she decides she needs pee pees in the back garden at some ungodly hour during the night), this evening little madam made me laugh, dished up our evening meal, that's hubby and me and yelled come and get it, Lottie instantly appears, of course her bowl had been filled too, pity her recall out walking isn't so good.  But would I change her, of course not, because she is always there when I need her, this morning on the bed on her blanket by my side when the lack of sleep was affecting my general health, the fatigue so bad that the only thing I could do was just relax on the bed and cuddle Lottie for a couple of hours.

    The only good thing about being not sleeping well, is that at night there are little distractions and i seem to study well, so this morning at 5 am I finished another assignment for my OU Course, another 5 weeks and it will all be over, final assignment will have been submitted.  But on a positive note OU has been good, my brain cells are ticking over again, and I have been bitten by the studying bug.  So I shall definitely be signing up for the next level in Social Sciences.   

    So I suppose life isn't all "Blue," I still have Lottie has my side kick and my OU Course is proving a positive thing in my life, plus I am keeping my local Sweetie Shop Friend Mike in business because my cravings for sugar are appalling lately, doubt the dentist will be so impressed, but hey as long as there are sweetie munchers like me he will always have teeth to fill, and never be unemployed.  God writing this whinge has been so helpful, a little bit of my light hearted writing has come back.

    Oh well thanks to anyone who has bothered to read this blog, but my hot water bottle is getting lonely, going to keep is company an try and get some shut eye.

    Hugs Lottielou and Lottie Daxie Dog

  • Audit...

    by Dr BB on 27 January 2010

    Well, the step-down lasted all of a couple of months, until I got another URTI. I tried to hang it out, but in the end it became obvious that my asthma wasn't going to come back under complete control, so I stepped back up and have been absolutely fine again since.

     

    The training has started again...that little voice inside my head has once again made me commit to a Golden Bond marathon place with Asthma UK, so I'll be pounding the concrete regularly again over the coming months.

     

    I've just started doing a little audit of asthma checks in our practice; it is well-known that young adults are probably the most difficult-to-access group in terms of regular health care, for a number of reasons ranging from increased mobility (i.e. moving around the country!) to a sense of immortality, lack of time for routine healthcare, and different priorities. A very quick check of our lists shows that less than half of our 18-25 year olds coded as "Asthma" have had a routine review in the past 15 months. I'm going to try and look at the reasons why - is it us? Is it them? How can we make these reviews more accessible and more worthwhile for them?

  • Newbie

    by kimanna on 12 January 2010

    Hi I'm Kim and I've been diagnosed asthmatic since i woke up on the morning of my wedding day.  23 years and two children and one grandson later even my doctor thinks I'm allergic to my husband!!! lol   He's lovely really.      I recently have been confirmed as having Chronic Brittle Asthma.    I joined this blog because reading some of the others made me realise my story and experiences are replicated across the country.

    I was born prematurely and had severe breathing problems from birth and throughout my childhood.  My teens were ok - I just couldn't do the sports or cross country at school.  Like I said my problems really started when I got married and had children.  After years and years of slowly getting more symptons and spells of being bad getting longer - with good times getting shorter - I finally was off work more than I was in - and my doctor with the agreement of my constultant went down the road of early retirement on ill health grounds.  That was 3 years ago - and apart from strong feelings of guilt for not working - I have to say there are times of sheer relief that I don't have to go out to work.  

    I am very lucky in that my consultant is very good and am under the constant care of the ARAS nurses who are just wonderful.  Until this week I saw them every two weeks to have my Xolair injections - but after two years we have agreed to give it a trial of not having them - I admit to not being sure if they are working and the only way to find out is if I stop.   The worry is that I will drop very quickly - but there is the option to start them again if this happens.  Time will tell.   I do feel more worried that I won't have the fortnightly reassurance from the nurses.   They know instantly how bad I am - better than I do.   

    The main reason for joining this blog - is although I have wonderful immediate care from my consultant and nurses - I dread the thought of having to go to A&E.  I once got told - "Well I can breathe like that!" from the most horrible nurse I have ever met - and left the  department with a bottle of Diazapan to calm me down!!! My poor husband was so angry I thought he would explode.   I have to say - not all visits have been like that - but you don;t forget!  The diazapan got put in the back of the cupboard untouched.   It amazes me that something could not be put on my records to let other hospital doctors know about me.  Just because my oxgygen levels are ok - I don't have a temperature and a rattle in my chest - I am still asthmatic and still can't breathe!!!!!!!

    Boy - writing this down is so theraputic - I could go on forever.  But I'll stop now.  and maybes come back later and tell you about my family life.   Now there's another story!!   Look forward to reading all your stories - this is mabes what I've been looking for. 

     

  • Well first of all to anyone reading this over the festive period, hope you are all having a good time and in good health.  Christmas, well I am a bit of a "Baa Humbug,"  I hate the build up, the stress and wrapping presents, the wrapping presents bit because it always looks like Lottie Dog has had some input, the stress, because enviably something doesn't go to plan, no matter how hard I try to plan things, something will shove a spanner in the works, the build up because in the world of media it starts in September!

    The stress was one of my niece's christmas presents being lost by Royal Mail, the spanner, our car breaking down the day before Christmas Eve and the AA telling us we had a 6 hour wait, oh whoopi, what joy!  Thankfully whilst I was off on a strop with Lottie Dog in the local park my guardian angel came to my husband's rescue, okay a local AA recommended garage got us going again, and we could go and deliver our presents and do our Christmas food shop.  So why am I delivering our presents before Christmas?  Well Christmas is a time where I just want to be alone having quality time with hubby and Lottie Dog, no pressure of trying to get around all the family, eating huge amounts of food and feeling slightly sorry for hubby because he can't enjoy a drink because he is driving.

    So for the past 5 years we have usually spent Christmas day having a long lie in, getting up mid morning and going out around midday walking with the dogs, yes I said dogs, because in the past our Christmas Day walks have also included Jazzie and Tilly a dear friend's blond and black labs when she has been away for Christmas to family.  But for the past 2 years Jazzie and Tilly have been with their family and it us just been us and Lottie Dog.  

    Its been the third year that Lottie Dog has been with us, we got her at 2 years of age as a retired show dog, her first Christmas was magical for us has we had just lost Max and we were so empty without a dog, Lottie had never really experienced the country life having come from London, and so to watch her run around the fields and woods was great, and even though we walk her daily Christmas Day with her is always extra special.  Watching her senses take everything in around her, her smile when she is off, yes dogs do smile is the best Christmas present I can have every year.

    But last Monday I felt dreadful, hubby had be early in his Christmas present giving and had given me his stinky cold, I was shivering, had sore throat, coughing and generally feeling quite sorry for myself.  By Wednesday things on the sniffle/sore throat front were fine but the cough had now turned into shortness of breath, peak flow down by a third.  Just great, I had done so well, no syringe driver for 5 weeks, Prednisolone down to to my maintenance dose for 5 weeks, and now the syringe driver had to be dragged from semi retirement in the knicker drawer and the Prednisolone be put back up to 40 mg, baa humbug.

    Okay it's Christmas Day I am not perfect, but come to think of it who is anyway?  But the most important thing I got to go for a walk with Lottie Dog and hubby, okay it had to be a gentle one on the flat, as gradients are certainly out, and there was lots of rest stops, but we all walked about 4 miles along the banks of the River Wye under the beautiful blue virtually cloudless skies, through what was left of the snow.  We saw a Heron flying up and down the Wye, Swans, Ducks and various other small birds, and everything around us was peaceful.  What could be a better way to spend Christmas?  Well I am sure you will all have ideas of your own, but that's my perfect Christmas Day, quality time with my family.

    Of course when we got home Lottie Dog being a Dachshund was a tad mucky so needed acquainting with the shower, both hubby and I had mucky boots, but what the hell it was worth it, after hubby sorted Lottie out and I myself I then cooked dinner from scratch for all us by myself, no hubby wasn't being lazy, I wanted to do it.  For me I felt reasonably well and I wanted to finish off a perfect day by cooking a great meal for two very special people, okay I know Lottie is a dog, but to us she is a person, she's Lottie (yes I am a bit la la too but that's what 40mg of Prednisolone can do to you sometimes).  So today has been my perfect Christmas Day and I hope yours has too. 

     

     

     

  • It has been a while

    by Lindsay TJ on 21 December 2009

    Well, it has been a little while since I posted anything here. That has mainly been down to technical fun, shall we say? It does seem to be ironed out now though.

    On the whole I seem to be okay with my asthma at the moment. The cold to warm air situation is not doing me any good, but i am learning to regulate it. So far, I have managed to nearly Christmas without a cold, better stil lwithout a chest infection. This must be afirst for many years. I am under no illusion that this will not remain the case but I may as well enjoy it whilst it lasts!

    I am looking forward to the festive season and know that I will be marvelling when I get in from the pub at how much better it is now there is a smoking ban. In previous years I would have spent much of the next day coughing dreadfully, now it is a pleasure to come home smelling okay and not generlaly wheezing my way through the night. There are some pitfalls to the season though. I have my mother coming to Christmas lunch. She is a chain smoker so that will be interesting nad of course the stress of the day does nothing ot help with e wheezoing. The sheer amount of alocohol will not hlep the asthma but with a little thought I should hold out.

    Before I sign off for the festic period I have a question for my fellow asthma friends out there: How do you stop the snoring that comes along whenyou have a prolonged period of wheezing etc? My husband is threateninig divorce!! so I am checking out herbal sprays etc. Am I wasting my money, putting my health at risk? etc. Any hel pand adivce would be gratefull received.

     

    Have a happy and healthy Christmas and new year

     

     

  • Well after a couple of lousy months, life is much more settled.  Syringe driver is having a well earned break in my knicker job, workhorse nebuliser is somewhere under the bed with well we won't go there, haven't cleaned under the bed for a couple of weeks so I expect the dust is like tumble weed, and pocket nebuliser is somewhere in the bottom of my handbag, and you know what a girl's handbag is like!

    Its nice being independent again, I hate cleaning but between the dog, myself shedding skin due to the Eczema and husband its a necessary evil, but at least now I am no longer forced to watch things done by hubby, and can do quite a bit for myself.  Its also nice to be able to make up for the several months which hubby did much of the cooking and in return look after him.  I am not saying that I am the dutiful wife chained to the kitchen sink, its just really great not being dictated to by my health and deciding purely on the basis to do something because I want to.

    Whilst I am still not walking long distances, I am able to walk at least one way to town or back with Lottie Daxie Dog, and we are both enjoying being part of the community again.  And that's one of the things are really miss when I am ill, I am quite a social person, don't mean clubbing every Saturday night, these days mug of tea and cuddle with the dog is what I want on a Saturday night (its awful what am I like poor ole hubby doesn't even get a mention), I love meeting people when I am out and about, and because I own a rather cute Diva of a Dachshund often get stopped by admirers of Lottie and we chat.  And then I am Lottie's Mummy, and that is who I am, but when I am ill the few that do see me (and this doesn't include my friends and family who understand), don't see me as Lottie's Mummy, they just see the illness, and I hate it.  No matter how crap my health is, that's not who I am.  

    Which is why I own a dog in part, she keeps me sane, provides me with a healthy distraction from myself, and also gives others a more positive thing to which they identify me with, though not so sure about what the husband said the other day, he was out in the local park with Lottie and chap yells I know that dog, but she is usually with a plump lady, thanks!  So to all those medical staff who plead with their patients about owning pets, please think about the mental health benefits of your allergic patients owning animals.  I am not recommending that people who are allergic to dogs go out and get a pack, just that if that allergic person already owns an animal and by sensible management of their home, ie; regular cleaning and bathing of the animal plus using certain products available in the UK market to cut allergens, can live and cope with their pet, please don't make their life empty by persisting in getting rid of their beloved pet.  The sense of loss I felt when I lost my previous Dachshund Max due to ill health was awful, the empty black void he left made me so depressed and lonely, within just 4 weeks of his passing I became mummy to Lottie, and sometimes I feel it is necessary to say that pills and potions cannot cure everything, but what a pill cannot do, is bring a smile to your face when you hurt, alone or struggling to cope with complex and multiple health issues.  No matter how crap I feel, Lottie is always there, she doesn't pity me, she just accepts me how I am on that day, and muddles along with me.

     

     

  • Unstable Asthma Part 3

    by Lottielou5972 on 24 November 2009

    Lately my Asthma has been like the chapters of a book, hence the title "Unstable Asthma, Part 3."  Since my last post I have had a further two admissions to hospital via the Little Green Men and their big Yellow Bus.  Both admissions have been very different in that the understanding of my condition and the management on an emergency basis by the doctors on duty at those times couldn't have been more different if I tried.  On the second admission after arriving at the A & E department of my local hospital semi concious and being met by a medical team (so I was informed), once the team had done an excellent job of stabilising me, doctors kept a close eye on me, and some not having any knowledge of Brittle Asthma, took the time to come into resus and find out as much as possible about the condition in order to extend their knowledge of it.  On the last admission I arrived at the A & E department looking reasonably bright and able to talk in full sentences.  This unfortunately was my down fall,  the doctors on duty didn't know me, and decided that my condition wasn't that serious and probably after a few back to back nebs home might be a good idea.  I informed them of the previous week's events (at this point I had only been out of hospital 6 days), but despite this had to fight to get admitted and treated.  I eventually got the treatment I needed 6 hours after seeking medical help and where as the week before my condition settled quite quickly once I was treated this time it took over 24 hours to feel better, and during this period I did have a relapse that needed to be sorted rather quickly on the admissions ward the following day.

    I know I am not alone when facing these kinds of issues when needing emergency treatment, myself and everyone involved with my respiratory care have done everything possible to make these problems disappear to no avail (it would take a book to explain them, so for simplicity I will leave it at that).  What makes it difficult for medical professionals in an emergency setting is that there are no clear up to date guide lines for patient treatment.  Hopefully when up and coming events set up by the Department of Health inviting people to comment on part of a Government Paper that also includes a chapter on Asthma Care, people will be able to make a difference by speaking up (For more information please go to the Asthma UK's web site).

    I have been out of hospital 2 weeks today, and my Asthma is much better, the syringe driver is having a temporary holiday, and the nebuliser is now working just part time as to over time.  The steriods are being reduced nicely, which is good because my concentration is now much better and I can now get on with life without disappearing into hairy fairy land.  I am now back to walking the Daxie small distances of about 1 to 2 miles on the flat, or as the weather currently is wading through rather deep puddles in the local fields.  But do I mind, no, happy to be me again, happy not to be so reliant on others for help, though right now if anyone wants to wash to floor of yet more doggy muddy paw prints, and bath the dog open to offers!  

  • Unstable Asthma Part 2

    by Lottielou5972 on 25 October 2009

    I intended to start my Open University Course, at home, but my Asthma had other ideas. Last Wednesday I had another trip to A &E courtesy of the little chaps in Green with their big yellow bus, and as nice as they all are prefer the number 79 that runs past the front door. Yes despite everything, I still try to have a sense of humour.

    This time it wasn't a violent coughing fit that triggered an attack, it was a wallow in the bath tub. And since it was early in the morning I could travel in my new "Spoilt Cow" red pyjamas, as the previous week because the attack occurred in the afternoon, went in my day clothes and ended up in those dreadful hospital gowns that leave you feeling ever so exposed. This time I had another infusion of Magnesium but no IV Aminophylline or Hydrocortisone, spent several hours on oxygen wearing that really delightful facial jewellery called nasal specs. Respiratory Nurse was notified and she visited me in the afternoon, my Asthma had improved and since I wasn't going to have any further treatment, that I couldn't already have at home, it was agreed that I would be discharged, that evening.

    Had a reasonable night's sleep, and spent Thursday doing nothing, Thursday afternoon decided to sit down with my husband to watch a film and started to munch on a cake, not having been eating much lately, really fancied this, but wish I hadn't. As I started to eat I decided to have a coughing fit, wanting to go and get myself a glass of water because of the coughing, I went to get up and all I remember is sinking down to the floor. I came around with my husband a short while later after briefly cutting off my air supply. My husband assured me that I had only been out about 10 seconds, but this had not happened to me for about 6 years, and I was very upset and scared. Any thoughts of watching a film were forgotten, all I wanted to do was have bath and slink off to bed and sleep, which I did.

    It hasn't happened since thankfully, but I had forgotten how frightening it could be. Since this has happened I haven't been out alone, my cough has eased, but my Asthma remains pretty unstable. Last night was spent on the sofa, because my dear husband is shattered and I so wanted him to have some sleep, I felt I could sleep on my own because things are not quite as precarious, but between the sleeping I drunk a cup of tea, read a book, did some more sleeping and nebbing. So a pretty normal night except, my husband got some sleep for a change. Tonight I am going to sleep back in our bed, as today as been pretty reasonable and I hope that I am tired but well enough to have a reasonable night without disturbing either myself or dear hubby.

  • Unstable Asthma

    by Lottielou5972 on 19 October 2009

    Since this is my first post, let me introduce myself, I am 38, married, and a housewife in the living near to the Welsh Marches on the English Side. I have had asthma since I was nine years of age along with the associated allergic conditions Eczema and Hayfever. Since my late teens my Asthma has become quite severe and these days I am known as Brittle.

    The past 18 months my Asthma has pretty good, well that is I have managed to avoid a hospital admission, but during this period my maintenance Prednisolone of 20mg as had to be increased on various occasions. Over the past 6 weeks my Asthma once again has been dictating my daily life, can I walk the dog today or is it even possible for me to leave the flat? Amazing one entire week during the past 6 week period my life quality was excellent, one day in particular I managed to walk 6 miles in the local fields with my Dachshund, would love to know why I could do this? If I did know, I would bottle it, and self prescribe on my not so good days!

    Last week Asthma control was very poor despite having been taking 40 mg of Prednisolone for a week, I had also increased my sub cut infusion of Bricanyl (A drug that sometimes is administered just under the skin via Syringe Driver to help open up the airways), this was all done under the guidance and back up of a respiratory nurse. Thursday of last week whilst using my PC I had a major coughing fit which resulted in a serious deterioration of my Asthma, and my only option was to seek the help of the Ambulance Service and attend my local A & E. Both the paramedics and the staff in my local A & E were excellent, I spent a few hours in resus, and had to have IV Magnesium and Aminophylline to open up my airways plus Hydrocortisone. I am always sensible and carry a detailed list of medication, medical history and details on how to contact my consultant etc. On this list my syringe driver is listed along with the current strength of medication that is running through it, but it never ceases to amaze me how time and time again the doctor attending has no idea about these little portable syringe drivers. Whilst I understand it is impossible for a doctor to know everything, some Diabetics use them , plus those people receiving Palliative care may also use them. I feel it would be really useful to the patient and doctor attending to have some knowledge of portable syringe drivers. Normally after such an attack I would spend time in hospital receiving further treatment and recovering, but on this occasion I went home several hours later as there were no acute beds available, and I felt happier to be at home be able to access my medication when I required it. Plus I knew if things became out of control again I would attend A & E.

    The day after this attack I was naturally very well, after all the medication I had received in A & E the day before, and rightly or wrongly chose to go for a very gentle walk with my dog, and I am glad that I did. Since then I have been unfortunate to have caught a cold like virus and once again the Asthma is very unstable, it feels like my nebuliser is permanently in use and when not in use it has become my shadow as in if there isn't one in the room I am occupying at that time, then there is a mini one in my pocket. Under the guidance of a respiratory nurse I am supposed to be reducing the amount of Prednisolone I am taking, but since the cold as reared its ugly head, this has been stopped by me, as it would be silly to reduce medication when things are the way they are. Of course I am suffering at present because of my Unstable Asthma, and I don't mean just the symptoms, I can't walk the dog, I can do very little around the home for myself, and going out and seeing friends and family independently is not an option. But it isn't only me in this household that is suffering, my husband is too. I am currently more dependant on him to keep the house running, for personal care when I can't manage things like getting dressed by myself and apart from my sleep deprivation because of the Asthma husband is also suffering sleep deprivation . Of course he could always sleep separable, but neither of us would be happy, I would worry about being able to get his attention if I suddenly got worse and him like wise.

    But the good side of all of this, is that I have plenty of time to read, use my PC and tomorrow it won't be difficult to find time to start my Open University course. So even when the chips are down as they say, rather than feel sorry for myself, I try my best to see the good in things.

  • Little Wheezers

    by Dr BB on 06 October 2009

    Tuesday morning is Baby Clinic for me. I get the honour of checking over every 8-week-old baby on our practice list - and in the main, it's a nice interlude in my GP week. Most routine GP consultations involve problems, distress, pain or similar, so it's nice to do something that's almost completely pleasant (playing with tiny babies!) and reassuring for parents.

    Another time I tend to see a lot of small babies and toddlers is during the winter cough & cold season. Most kids - even the tiny ones - cope well with simple viral upper respiratory tract infections (URTIs, as we abbreviate them), but some do develop problems beyond just a cough and a runny nose. Some of them will wheeze and might require treatment for this.

    Now, I've mentioned the "W" word - wheeze. In many peoples' eye, "wheeze" is inevitably linked with "asthma". So when I mention that I can hear a wheeze on little Johnny's chest, I get worried looks from Johnny's mum. "Is he asthmatic?" might be the next question.

    Happily, the answer will usually be, "No". We know that around 50% of those children under the age of two years who wheeze will not go on to have a lifelong asthmatic tendency. More so if they are what we term "happy wheezers" - i.e. those who seem utterly unpeturbed by the wheeze and carry on as usual, in contrast to those who are poorly with it.

    Of course, as doctors we then muddy the waters because the treatment for wheezy kids is exactly the same as for wheezy asthmatics - maybe a blue inhaler (although for very young children, the alternative, Atrovent, may work better) to open the airways to stop the wheeze, sometimes antibiotics if there is evidence of a chest infection. No wonder parents get confused when they're asked later in little Johnny's life, "Does he have any history of asthma?"...."Well, he had an inhaler when he was little". This can lead to mixed messages, and maybe mislabelling of older children as having a history of asthma. I usually, therefore, spend a little time explaining about "happy wheezers" and what I term the "50% rule".

    Of course, if this is little Johnny's fourth visit in as many months with wheeze and cough then that may change the picture slightly. That's why I always spend a few moments reviewing recent consultations before I call each patient in - it is just an important to see what's gone on before, as it is to deal with the acute problem. It's difficult to diagnose asthma in children under five or so; even more so children under two. So if I suspect it's asthma, I will usually end up referring them on to our local friendly paediatrician for confirmation.

    And of course, once they hit the age range, I'll point them in the direction of the Kick-Asthma holidays - for those children whose asthma plays a significant part in their lives, or who may be struggling with it. It's important for them to know how to control their own asthma, take responsibility for their treatment and learn why they are taking their medicines. That way, they can see how they can live a full and active life despite their asthma.

     

  • Flu Jab

    by Lindsay TJ on 21 September 2009

    I am facing a real problem. I am being 'offered' both the seasonal and the swine flu jabs again. I have not been vaccinated before for flu, in fact  I had very few childhood vaccinations as my mother and GP worried about side effects as I was a premature and very small child. I try not to take anti biotics (I am allergic to penicillen sp?) and would rather not have a jab, but I am worried about flu, not least because I know what a chest infection nad other effects will be like for my asthma. I know I have asked this before but it is a worry.

    On a seperate note, I have started to do some more strenuous exercise and the breathing is okay. I was wheezy for a while yesterday but I think I disturbed a lot of dust in my room when sorting some clothes and it hung in my chest for a while. I am hoping that the exercise and hopefully the subsequent weight loss will all help to sort out the asthma problems and keep the effects to a minimum.

    I will keep you informed

  • Stepping down

    by Dr BB on 13 September 2009

    Mainly about me, again. Sorry. As we head more into winter, there might be a few more "stories from the surgery" type things, but it seems our practice population's asthma is responding well to the warmer weather - well, what passes for warmer weather thes days, anyway.

    The title? Well, don't panic, I'm not stopping blogging, or volunteering, or even GPing. Having been very well controlled with my asthma on BTS Stage 4 medication for some time now, we've decided to have a go at reducing down my medication to see if I can remain well-controlled on less meds. So far, so good at the 2-week stage - no night-time symptoms, maybe a few more exercise symptoms - but we'll just have to see how that goes; as it is, it's not been interrupting my training or causing me to stop when I'm out for a run. Fingers crossed!

    Speaking of training, after the post-marathon blues cleared away, I decided I needed a new challenge - so next weekend, I'm doing my first triathlon. It's just a "sprint" triathlon (I'm leaving Iron Man for next year, ha ha ha...!) - that is, 500m swim, 20Km cycle, and 5km run. I'm really looking forwards to having fun and challenging myself in a new way.

    A friend asked me last weekend why I keep running, and why I'm now doing a triathlon. My answer was something along the lines of, "Because I can". A number of years with improperly controlled asthma, and the psychological hurdle of being afraid of being uncomfortably out of breath, left me out in the cold as far as running was concerned; I couldn't run, therefore I didn't run. It was a struggle to get both of these hurdles behind me, but now they have been left a long way behind. And for the moment, therefore, I'll run just because I can, and to prove that it's possible that you don't have to stay on the bench if you have asthma.

     

    You can read more about the BTS Medication "Steps" in the BTS Guidelines on Asthma Management - http://www.brit-thoracic.org.uk/ClinicalInformation/Asthma/AsthmaGuidelines/tabid/83/Default.aspx

  • Seconds out... Round 2

    by Lindsay TJ on 10 September 2009

    Two posts in one week, is this beginners enthusiasm, probably.

    What has spurred me onto to write a second post is first of all to aplogise for my atrocious editting, or lack of in the first post, to respond to Caspar and to tell you about the last few days.

    Caspar- thanks for reading and commenting. I think being overweight doesn't help my condition any, but I did suffer a lot when I was an underweight child. Asthma triggers when I get active so it turns into a vicious circle. I want to exercise to get fit and well, but when I exercise my asthma triggers. So, I am doing core stability at the moment and building to more high impact activity. I will keep you posted. Also I am off to Greece in a few weeks and am much more active when I am away, so a combination of swimming and hot sunshine should counteract the increase in smoking around me. I don't think that the smoking ban is rigourously enforced at the moment in Greece, or at least some parts of it.

    As far as cat fur triggering me, that is an interesting one as I am okay with familiar animals to me but am awful if I get near a new animal.

    I don't know whether it is a self fulfilling prophecy but since doing post one I have been wheezy and dreadful at night as I just drop off. My long-suffering OH is getting sick of what he calls the funny breathing noises and the snoring. As if there is something I can do about it!! If there is then any hints and tips are welcome as always.

    The good weather is not without its drawbacks as well, especially as the mornings are cold. The change in temperature always shocks me at this time of year.

    Not a few good days for me and my asthma all told. Keep reading, keep commenting, and I leave yo uwith one last thought and plea for help, should I have a flu jab? 

     

  • Asthma and me

    by Lindsay TJ on 08 September 2009

    This is really new to me, blogging I mean, and in a way Asthma (or at least diagnosed Asthma is).

    I am, I am sorry to say, in my mid thirties now and have been diagnosed as an asthmatic for 2 1/2 years, but I have lived with the condition for many years prior to that.

    I am married, with no children but 6 cats. I live in a viallge, near the coast, work to the north of Liverpool in quite a sedentary job. On the whole I am not that active. I hope that this gives you some insight into my lifestyle. What else, I don't and never have 9apart form a few social cigarrettes in my youth) smoked, nor have I ever taken recerational drugs. I do drink alcohol socially. I also live with allergies, rangnig fomr a severe seafood allergy to mild skin irritations.

    although my condition is generally mild it does affect my life on a daily basis. It always has. I wheeze, or getting a kind of grainy feel in my chest. Colds always menifest themselves in some sort of chest problem and I have dreadful coughs at points throughout the year.

    It is not all bad. Inhlers help significantly and I use a lot of steam therpay. All of the things I do around asthma have been with me for so long, apart from the medication, that it is second nature to me now, although I will think about them and post them here.

    No-one else in my family has this problem. No-one else is as sensitive as me. So why me? I was 8 weeks premature in the 1970's, I have lived in a smoke filled home my whole life and I am overweight. Unlucky? maybe but it is manageable.

    I hope that my blog helps some people to relate to asthma, maybe people can offer me some practical advice to help with things like snoring (or I will be in the spare room soon!!) and the dreaded Winter cold season.

    So, I hope it is useful, readable and enjoyable. I get the feeling that blogging could become quite addicitve. See you soon

     

     

  • A Marathon Effort

    by Dr BB on 30 July 2009

    Wow, it's been quite a while since I posted; this probably reflects how busy things have been!

    As I mentioned a few posts ago, I secured a place to run the London Marathon for Asthma UK. The training was extremely hard work, and had some ups and downs - this is the reality and frustration of trying to combine serious exercise with moderate/severe asthma. I have always found that regular running actually improves my asthma control; but of course, if the asthma starts playing up of its own accord, then the running becomes more difficult. As such, although I had a fixed training plan, it had to become more flexible to account for those days when I couldn't train to my fullest potential - mainly due to those odd little sniffles and colds which, whilst really quite mild, just put the dampner on things from a lung perspective.

     

    Anyway, overall training went well although it really does take over your life - there are no "short" runs; well, there are, but it's all relative. 6-7 miles becomes quite short when you're training to run 26.2. Long runs last anything upwards of three hours. When you're not running, you're thinking about running; eating for running; hydrating for running; thinking about strategies, training, racing; and sometimes even dreaming about it. It's a mad old time, I can tell you.

     

    Anyway, Sunday 26th April was pretty amazing! The atmosphere was amazing, the crowds fantastic, and the support from the Asthma UK staff was brilliant. I completed the marathon (with a few stops for chatting to friends and family!!) in 5 hours 12 mins.

     

    Oh, and the fundraising? Words fail me. Thanks to the incredible generosity and kindness of friends, family and some people that I don't even know, I have raised £2,521.02p. Thanks so much to everyone who contributed!!

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Wanted: asthma bloggers

The asthma blogWe're looking for more people with asthma to tell their stories in the asthma blog. So if you want to help others by sharing your experiences, download the registration form, follow the instructions and we'll set you up.

The asthma bloggers

Kimanna was diagnosed with asthma on the morning of her wedding day 23 years ago
LottieLou5972
has had asthma since she was nine and is now brittle
Dr BB is a GP in the West Midlands. She volunteers for Asthma UK and lives with the condition herself.
Lindsay TJ is in her mid 30s and has had asthma for 2 and a half years. She lives with her husband and their six cats.
Truly has had asthma for eight years, and for the last six it has been classed as severe brittle asthma.

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